12th Neuroblastoma Parent Education and Medical Conference 

Neuroblastoma researchers from around the country are developing new treatments and therapies to improve survival rates and reduce the long-term effects of treatment. Meet some of them at the Children’s Neuroblastoma Cancer Foundation’s 12th annual Parent Education and Medical Conference:

2013 Westin Pic For Conference

 June 25th - 28th, 2015

The Westin Lombard Yorktown Center
70 Yorktown Center
Lombard, IL 60148

****Hotel Registration has been closed.  If you are in need of a room please contact Pat Tallungan, pat@cncfhope.org or NIcci DiBenedetto nicci@cncfhope.org *******                                               

Neuroblastoma families have many, many questions, and resources aren’t always readily available. The Parent Education and Medical Conference is a chance for them to get the answers that they seek. Attendees will be able to hear directly from the top neuroblastoma researchers, form valuable networks with other families, and learn how they can become involved in – or create their own – fundraising opportunities in their communities.
Each year, families rave that the conference provides them with a chance to get away, relax, and commiserate with other people who can relate to their circumstance. Children ages 12 and younger can enjoy activities in our “Kids’ Room” * while their parents attend the meetings. (Older children and those not participating in the Kids’ Room are the responsibility of the parents).

The conference can accommodate no more than 200 attendees, and space fills up fast. Breakfast and lunch will be provided.
We are pleased to advise that CNCF will be subsidizing part of the cost of the hotel rooms for each day of the conference.  The cost to the family for each night is $59.00 + tax and any incidentals such as room service, movie rentals, etc.

Please note though when you do get to the Westin reservation screen it will show the entire room rate of $119 + tax/night.  Please disregard this as when you check out of the hotel at the end of the conference, your charge will only be $59/night + tax and incidentals.
A Special Message from Pat Tallungan President of CNCF
We need your help, neuroblastoma families. In order to continue to put on this important conference every year, please consider CNCF in your annual giving and fundraising activities. Engage other family members, friends, co-workers and business associates in our mission, and direct them to our Web site to make a tax deductible donation. Donors can designate your child’s or your family name so that we know who to thank.   
For those who have attended the conference in the past, you know firsthand the value of this program. Please help us to be able to continue this conference for yourself and the families who will be joining the neuroblastoma community.  If you need financial assistance please contact Nicci DiBenedetto at nicci@cncfhope.org.
Thank you and we hope to see you soon.


Pat Tallungan




Dr. Giselle Sholler                           Dr. Peter Zage                         Dr. John Maris
Dr. Darrell Yamashiro                     Dr. Araz Marachelian              Sloan Kettering speaker
Dr. Keri Streby                                  Dr. Navin Pinto                         Dr. Yael Mosse
Dr. Danielle Friedman


Thursday, June 25, 2015 

Event                                                              Time                                                        Room
Early Registration                                        4 pm to 6 pm                                         Junior Foyer
Dinner at TBD                                              6:30 pm to 8:30 pm                                          

Friday, June 26, 2015

Event                                                               Time                                                 Room
Registration                                                   7:00 am – 9:00 am                      Junior Foyer
Breakfast Buffet                                             7:00 am – 9:00 am                      Lilac A,C                                                           
General Session                                           9:00 am – 5:00 pm                     Lilac B,D                                                         
Morning Break (Adults only)                        10:30 am – 10:45 am*               Lilac                                                                
Kids Room                                                      9:00 am – 5:00 pm                     Magnolia                                                          
Lunch (All Adults & children)                       11:45 am – 1:00 pm*                 Lilac A,C                                                         
Afternoon Break (Adults only)                       2:30 pm – 2:45 pm*                  Lilac
Concurrent session for Angel Parents    9:15 am – 4:30 pm                   Cypress A                                                       
Dinner & dancing                                            7:00 pm – 10:00 pm                          Junior Ballroom A                                               
With a DJ/music/karaoke and Dancing               Cash Bar                                  

Saturday, June 27, 2015

Event                                                               Time                                                           Room
Breakfast Buffet                                             7:00 am – 9:00 am                                 Lilac A,C                                                           
General Session                                           9:00 am – 3:00 pm                                 Lilac B,D                                                             

Morning Break (Adults only)                        10:45 am – 11:00 am*                            Lilac                                                                
Kids Room                                                      9:00 am – 3:00 pm                                 Magnolia          
Lunch (All Adults & Children)                      11:30 am – 12:30 pm*                            Lilac A,C
Concurrent Session for Angel Parents   9:00 am – 3:00 pm                                  Cypress A                                                       
Movie Night for the Children                         7:00 pm – 10:00 pm                               Grand Ballroom I, J
Relaxation time for Parents                          7:00 pm – 10:00 pm                               Lounge                        
-- Saturday dinner is on your own.  We will have munchies and beverages for the kids during the movie--
*Times are approximate and may be subject to change.

Sunday, June 28, 2015

No events planned for the day.
Travel day back home for families.
We will be having a balloon maker, juggler, magician, and stilt walker for the children’s enjoyment and for some of the older children we will have several Wii systems and Guitar Hero to play with as well.
As always, if any of your children are sick or not feeling well that day, we ask that they do not participate in the Playroom activities as some of our children are still immune-suppressed from treatment. Also if they have recently been vaccinated, been exposed to chicken pox, shingles or any other contagious disease we ask they stay with you and not join in with the other children. Thank you for your consideration in this very important part of the conference activities.

ATTIRE:  Casual to very casual (including jeans). Bring a sweater or jacket as the rooms tend to be cold.
***All other incidental hotel room charges, movie rentals, room service, etc are the responsibility of the guest.***