I can completely relate to your situation. My son, Benjamin, was also diagnosed in utero. I want to second the information that Mark posted; the prognosis for babies is much better than toddlers. I know there is a lot to think about right now and if I can be of any help to you, please feel free to call me at (517)339-3360 or e-mail me.
Candace (mom to Benjamin 4 years old)