Hello everyone, anyone?
My name is Karen. On June 19, 2007 my then 7 year old Son had a soccer collision that resulted in us learning he had an orange sized NB tumour between his adrenal gland and kidney. Since then we have undergone the whole gamut, bioposies. CT, MIBG and PET scans, suguries, chemo, stem cell transplant and radiation and 6 months of accutane. All this got us to where we are now: NED.
NED is the greatest gift, we are thrilled, we are joyous, we are releived. WE live in it's wonder everyday.
However, a year and a half later our now 9 year old son is having issues re-integrating at school.
Until now we have been "deal with it ourselves" sort of parents. But these issues are escallating at school, we are working with a cousellor at the school and an Oncology psycologist through Children's Hosp. But we don't have any answers as to whether this behaviour is normal, to be expected or just our son behaving badly. So far we've been trying to address and consequence the behaviour. But I'm beginning to wonder if there is more going on inside his head than we know. The behaviour we are having is: easily frustrated, no patience with classmates who need more time with work, getting mad at playmates for taking too long on playground equipment, always wanting to be first, lead the class. Sometimes he wants to be left alone and if the group of kids keep pestering him to play / participate he'll lash out verbally.
The parent of one classmate in particular is calling the school daily with updates of what our son has done to make her son's life difficult. So the Princpal and VP are calling me. WE are working on it, but now our son is under a microscope and getting really upset, feeling picked on. I don't know. I just don't know. But we are an involved, loving family, we insist on better haviour at home from all of our children and don't have these dificulties elsewhere.
Has anyone had any similar post treatment experiences? WE have been so busy being grateful that our son is here, now we are having issues. I don't want to be one of those "not my kid" parents and I don't want to play the "cancer card" if this is just a kid who is misbehaving.
What do we do?