We were just diagnosed on the 26th of March . My Son turned 2 the next day WOW. We were looking into Sloan Kettering Memorial in NY . We have found they are the best and have specialists of course there is insurance red tape.. We are currently in Florida Hospital South - We are somewhat reassured by doctor Hajjar but we want feedback we cant find anything anywhere. How Ironic one of our close friends lost there son to the same Doctor or Hospital same diagnosis three years ago but his tumor was a midline one which caused problems. We just started chemo yesterday on my wifes birthday what a month . It seems to be going good we have had one transfusion so far which I guess is abnormal ? We are supposed to meet or talk to Brain Kushner in NY next week . We just wanted to know if someone could recommend a Florida Specialist or if they have used our doctor/ hospital etc. As you can imagine we want to get this right the first time also they do not offer the Antibodies which are on suspension from the COG .
What do you think ?