My father-in-law (I know, a far cry from a child, but this was how I learned of Paraneoplastic Syndrome at first) was diagnosed with this syndrome (he has lung cancer). I found basic information, and suggested treatments available (again, very basic information) on the NIH website: http://www.ninds.nih.gov/disorders/paraneoplastic/paraneoplastic.htm. I wish you and your family all the best and hope your daughter recovers quickly. I had never heard of Neuroblastoma until today, when a co-worker's 3 year old son was diagnosed (on April 3) with this cancer. It's a sobering thing to learn, and even as "removed" (i.e., not a family member) as I am from it, I feel "beaten down" today - I can't even begin to know how his parents must feel right now.
My heart & prayers go out to all the parents out there fighting alongside their children in this battle.