I don't write on here very often, but I have some questions about a topic that is on many of our minds lately.
My son Wyatt, (1 year old, stage IV, NMyc amp), is day 74 post BMT. Today we were told that we will hopefully be starting the ch14.18 Antibody Therapy in a few weeks.
I am asking if anyone has any advice who has gone through this, for what we should expect going into this. We start the re-staging tests next week.. in hope they will get the okay to start us on the protocal soon after. We were told that his counts will go down again and he will be immune-suppressed again... is this true? Will we also need three or more lines? (Wyatt has a double Lumen Hickman... and they told us he will likely need to have one or two PICC lines put in, in addition to his Hickman... is this true? Is there anything that we should know to ask the doctors about this?
Thank you ahead of time to anyone who can comment on anything in this message.