My son was dx with Stage IV NB in the beginning of April. He has completed 3 rounds of chemo (ANBL0532). The biopsy sample was too crushed to determine MYCN amplification. His primary tumor was paraspinal on the left side, with mets to the marrow (50% inv), and 3 main places in the skull with various other tiny places, like the jaw.
We had CT scans done on Thurs of this week, and the result was that the tumors are gone, even the primary tumor. My question is, how common is that at this stage, and does it truly mean anything in the long run? I know this NB is a nasty beast, and that relapse is more common than not. As we have passed the news on to family members I have had difficulty celebrating with them. The marrow is also clear, it was so after the 2nd round. We harvested for stem cells and collected enough for 6 bags in one harvest.
Thank you to anyone who has anything to offer in the way of experience or research data, etc. I'm still new at this and trying to find places to read and learn from.
Mom to Rileigh (10) Joseph (8) and Garrett (2, Stage IV NB 4/09)