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06-19-09 11:59 PM
Denise Goyack
New to site

Hello Everyone,

My name is Denise, last month we found out our 20 yr. old Steven has Stage 4 Neuroblastoma. What a shock, his tumor is in the adrinal gland. The cancer has already spread to to bone marrow.

We live in live in the chicagoland area. Have already been seen at childrens in the city. ( so not happy with them, long story) If there is anyone around our area that might have any information to share we would love to hear from you.

Thank you,

Steve and Denise 


06-20-09 09:23 AM
Donna Ludwinski
Re: New to site

 Dear Denise--please email me!

My son is 24, relapsed at age 20.

His site is

There is a NB conference in Chicago in July--sign up at

 I am sorry to hear about your son, many prayers for you all.


06-27-09 09:26 AM
Re: New to site


I'm so sorry to hear of your son's diagnosis.  We are also in the area and our son is treated at Children's. He has been in remission over a year for stage IV NB.   I'd be interested in hearing who your son's team is.  I'm also sorry to hear you had a bad experience there.  Please feel free to contact me if you want to talk.

 Kate Perschon