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06-19-09 11:59 PM
Denise Goyack
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Hello Everyone,

My name is Denise, last month we found out our 20 yr. old Steven has Stage 4 Neuroblastoma. What a shock, his tumor is in the adrinal gland. The cancer has already spread to to bone marrow.

We live in live in the chicagoland area. Have already been seen at childrens in the city. ( so not happy with them, long story) If there is anyone around our area that might have any information to share we would love to hear from you.

Thank you,

Steve and Denise 

 

06-20-09 09:23 AM
Donna Ludwinski
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 Dear Denise--please email me!

ludfarm@arvig.net

My son is 24, relapsed at age 20.

His site is www.caringbridge.org/mn/erikludwinski

There is a NB conference in Chicago in July--sign up at www.nbhope.org

 I am sorry to hear about your son, many prayers for you all.

 

06-27-09 09:26 AM
kateperschon
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Denise

I'm so sorry to hear of your son's diagnosis.  We are also in the area and our son is treated at Children's. He has been in remission over a year for stage IV NB.   I'd be interested in hearing who your son's team is.  I'm also sorry to hear you had a bad experience there.  Please feel free to contact me if you want to talk.

 Kate Perschon

219-865-6581

perschonfamily@yahoo.com

www.caringbridge.org/visit/drewperschon