I am a 35-year old male who was just diagnosed with cancer (Jun 12, 2009) after a biopsy was done on a large mass discovered in my pelvis. It was a CT Scan on June 4th that revealed a tumor over 18 cm long. For the last 3 months its effects on my body had been causing very intense low back pain that had begun to spread from legs to chest. There had been much pain in my low back and groin for almost 3 years but nothing this bad, and now there was trouble urinating and having bowel movements.
I was uninsured and unable to get any type of affordable insurance. I am self-employed and just don't make enough to afford a high monthly or deductible. My fiance and I were to be married the next year and knew her group insurance plan would fully cover me, but we weren't sure we should push up the wedding date for that reason alone-- we didn't expect such a dire diagnosis. Family members were finally able to chip in with cash to get me the tests I needed.
Once the abdominal CT Scan revealed the main tumor (and a bunch of other lumps, lesions and cysts) my fiance and I immediately pushed up our wedding.
We were married June 10th.
The cancer diagnosis came back as Ewing's Sarcoma on June 12.
I saw my oncologist for the first time on June 17 and was told I was stage IV and should be in the hospital ASAP to begin treatment.
June 19 I was admitted to the hospital, had ureter stents put in both kidneys that weekend and had my first dose of chemotherapy started around the 25th.
It wasn't until the following week that my diagnosis had changed to Neuroblastoma. Additional pathology of my biopsy revealed this.
At this moment, I'm in the hospital, writing from a laptop connected to public wi-fi. I've felt so exhausted this past week and am just now beginning to explore new resources for neuroblastoma. I'm very glad to have found this website. I definitely fall into the minority, being diagnosed with neuroblastoma at age 35, but I hope my explorations will prove useful over time to others who are seeking out info as diagnosed adults or parents looking for additional insights into the experience of neuroblastoma.
You can find my cancer blog at: http://cancercaw.com