A welcome you all: sorry if I have not replied before but we returned yesterday evening from the sea, Croatia, we visited the control to Sam on 20 July and then we immediately parties with the joy in the heart! Thanks to God is all ok:-):-):-) and I had opportunity to speak with the doctor of his behavioural problems and anger..as we can have an appointment with the psico-oncologist we discuss with youmost likely you are strong stress over this year and a half of therapy and the absolute lack of interaction with other children..I very much hope that before September you can begin a series of meetings, so that my husband and I we can have tools to deal with..Sometimes I feel very lost and I do not know how to react to its provocation verbal and physical..and think that it was a child so sweet! but then the look in the eyes and I thank the Lord..
For Dawn, Richard, Denise: Sam from September 2007 approached 8 cycles of chemotherapy (COJEC) one every ten days, then made the collection of stem cells and December 2007 for the removal of the tumor surgery (befor chemio 10 x 8 x 7 ,after the chemio half) .at January 2008 approached chemotherapy mieloablativa and the autotrapianto surgical, insulated for approximately 30 days..in April 2008 was the round of radiotherapy for 15 days..also sam after treatment with 13 acid for 6 months and fortunately (although it has been extremely heavy treatment) was chosen for the infusion of the GD 214.18 antibody for 5 months one time per month..at the end of October we finished all protocol called NB-AR-01..I do not believe that cis-retinoico acid had behavioural at the time of treatment, consequences unless there are no late side effects that we do not know, as for the rest of the treatment suffered..
For Drvasilios, Denise: there I my wish for your children who have started just care..you have the strength to deal with each step at a time, every single step, one after another without looking too forward but struggling every single day..We are neighbours, and there I would like in my heart..
for all: thank you for your answers are very valuable: in this bad adventure unfortunately cisiamo ritovati to combat it alone, without the support of friends and without understand how shocking a State throughout the treatment period and it is still hard to deal with its consequences (without knowing then consequences due to drugs..) and days of the controls that become a sword of Damocles wallowing on the head..Unfortunately only those who lived or live this bad experience hard to imagine bottom of the stravolgente..Thank you for near there:
with all my heart:-)
p.s: always sorry my English