My son was diagnosed with stage IV neuroblastoma when he was nine months old in 2000. He went through a year and a half of treatment, including chemo, radiation, surgical removal of masses, and a bone marrow transplant. He has been in remission since this time, thank god. At ten years old, he doesn't seem to be growing on pace with the rest of his friends. Our doctor in Portland has recommended an endocrinologist see him, with which my wife and I agreed. I try to keep him out of hospitals as much as I can, as he has an understandable aversion to them.
I am hoping someone here has some knowledge regarding growth issues for children following neuroblastoma treatment, and options to counter them. I do not want to come off as petty, knowing that my son being alive is the greatest gift I have ever received, but I also want him to have the best life he can, and if there is anything we can do to help him.
Know this, our doctor in 2000 told us that was really no chance that our son would survive. Have hope, miracles happes.
Thanks in advance,