My son is 19 months old and was diagnosed at 6 months old with stage 4 MYC-N. He's responded well to treatment and is currently NED. He's being treated in the UK and is on the European protocol. At the time, the 14.18 antibodies were not available in the UK so I felt we had no other option other than MSKCC and 3F8. He started antibodies on day 104 post transplant and had his first cycle in October and then again in November but tested HAMA positive after this. He had another HAMA test last week and is still positive. We are going back to MSKCC for rituximab and cyclophosphamide. Has anyone had any experiance of this? Did it work? Are there long term side affects?
Joshua has only had 2 cycles and I am desperate for him to have as many as possible.
Any advice would be really apprecaited