I am a 59 year old woman who was diagnosed with adult neuroblastoma in 2002. I had two separate surgeries to remove two tumours (one in my chest cavity and one above my left adrenal gland). In 2006 two more appeared in almost identical locations. Within four and a half months, I had two surgeries and 12 weeks of aggresive chemo (pediatric protocol) and lost a kidney in the process. Since then, I undergo quarterly CT scans and so far so good. I feel very blessed to have reached the age that I have but my heart goes out to the children who get this horrible disease. I am very active in supporting the James Fund for Neuroblastoma Research in Toronto Canada (I live in Canada) and the Neuroblastoma Society in the UK (where I was born). I am constantly spreading the neuroblastoma word and making people aware of the disease and the suffering of its young victims/survivors and the distress it brings to families. My heart goes out to you all. As there are only approximately 60 documented cases of adults with neuroblastoma worldwide, I am not able to discuss my disease with another adult. Namaste.