News & Events
02/03/16
Children’s Neuroblastoma Conference Offers a Lifeline to Families

Children’s Neuroblastoma Conference Offers a Lifeline to Families

Parents will learn of latest treatments for the solid-tumor pediatric cancer during

The Children’s Neuroblastoma Cancer Foundation (CNCF), with the generous support of United Therapeutics Corporation, announces its 2016 Parent Education and Medical Conference July 14-17 in Lombard, Illinois.

The conference will bring together information on the latest treatments for neuroblastoma and the families who are in the fight of their lives against the disease. Each year neuroblastoma strikes about 700 children, most of them infants and toddlers. It manifests as solid tumors in the head, neck, chest, pelvis or abdomen. The survival rate is 40 percent for children with advanced stages of the disease.

The CNCF conference will present leading neuroblastoma researchers and clinicians sharing their cutting-edge work and clinical trials in the quest to overcome the disease. The multiday event draws parents, caregivers and advocates from across the country and overseas.

Pat Tallungan, who lost her son Nicholas to neuroblastoma when he was 10 years old, founded CNCF a year after his death, in 2000, to support research, treatment and education programs. She has organized the conferences in suburban Chicago for over a decade.

“Nick was 6 when he was diagnosed with neuroblastoma, and information and resources were scarce,” Tallungan remembers. “Neuroblastoma has a higher incidence rate among infants than leukemia, but many people have never heard of it. I don’t want any family to go through this fight alone and unaware of treatments that have the potential to save a life.”

Past CNCF conferences have presented leading neuroblastoma researchers from the University of Chicago’s Comer Children’s Hospital, the Children’s Hospital of Philadelphia and Memorial Sloan Kettering Cancer Center in New York.

CNCF, a 501c3 nonprofit, provides as much financial assistance as possible for first-time attendees and families strapped with medical bills to attend the conference, which also connects them with survivors, therapists and other parents sharing their insights and support.

United Therapeutics, a biopharmaceutical manufacturer, has provided support for the conference, in keeping with its mission to address the unmet needs of patients with life-threatening conditions.

“We at CNCF are grateful that United Therapeutics is standing behind our grass-roots effort,” Tallungan said. “We can’t win this battle alone.”

The conference in July will be at the Westin Hotel in Lombard. For more information, visit www.cncfhope.org, or call 866.671.2623.