#20forHope Social Campaign Launches Sept. 20 to Raise Awareness of Neuroblastoma
Children’s Neuroblastoma Cancer Foundation invites people to post dance videos that day on social media to help raise
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$700,000 to fight aggressive childhood cancer by year’s end
For Childhood Cancer Awareness Month, the Children’s Neuroblastoma Cancer Foundation has designated September 20 Neuroblastoma Awareness Day and will launch a #20forHope
social media campaign to raise awareness, education and research dollars to beat an aggressive childhood cancer sorely lacking in funding.
On September 20, individuals, groups of friends, co-workers, dance troupes and cast members are asked to record dance videos of 20 seconds or more, post to social media using #20forHope
, tag followers and invite them to donate and share their own dance videos on Facebook, Twitter and Instagram. In the weeks leading up to September 20, CNCF will release a promotional video featuring neuroblastoma survivors and young children currently in treatment or dealing with the after effects inviting the public to dance for hope.
The objective is to create a viral campaign to help CNCF reach a fundraising goal of $700,000 by year’s end on behalf of the estimated 700 children diagnosed with neuroblastoma each year. Funds will be used to support CNCF’s education and awareness initiatives, including its annual Parent Education and Medical Symposium, as well as research grants.
Neuroblastoma is more common in infants than leukemia and has been called “the great masquerader” because it mimics common childhood illnesses. It originates from immature nerve cells and manifests as a solid tumor most commonly in the adrenal glands above the kidney and in nerve tissues in the neck, chest, abdomen or pelvis. Its primary victims are under age 5. Survival rates for patients in advanced stages of disease is 40 percent, and there is a high rate of relapse.
Since 2005, CNCF has contributed more than $2.5 million to fund neuroblastoma research, helping to fill funding gaps that, unfortunately, are typical for lesser-known childhood cancers. In the U.S., the majority of cancer research dollars go to fight cancers most commonly found in adults. Less than 3 percent of the American Cancer Society’s funding is designated for childhood cancer research.
“It comes down to this: We can do more with more. But the reality is the way cancer research is funded, our children are largely being left out,” said Pat Tallungan, president of CNCF. “There are neuroblastoma researchers on the cusp of major breakthroughs that would give the youngest cancer victims a real chance at survival and a better quality of life. On September 20, we’re asking the public to care enough to give a few dollars and hope to children and families suffering with this terrible disease.”
When Tallungan’s son Nicholas was diagnosed with neuroblastoma in 1995, there was very little information available on the disease. Tallungan co-founded CNCF in 2000, one year after Nicholas died at age 10. In 2002, CNCF held its first Parent Education and Medical Symposium to connect families with the leading neuroblastoma researchers to learn about the latest treatment therapies and clinical trials. Money raised through the #20forHope
campaign will also cover travel expenses and meals for families struggling with high medical bills to attend the annual neuroblastoma education conference.
“CNCF’s motto is hope unites us,” Tallungan said. “On September 20, we hope that people who care about children’s health and well-being everywhere will dance with us to give children with neuroblastoma a fighting chance.”
For more information on CNCF and neuroblastoma visit cncfhope.org. Follow CNCF on Twitter