Like many neuroblastoma patients, Bill Coon knows what it is like to undergo medical procedure after medical procedure at a young age. Coon was born in 1989 with a congenital heart defect and became the eighth infant in America to receive a heart transplant. At the age of 20, his transplanted heart began to fail, and so did his kidneys due to a lifetime of taking medications.
Coon began chronicling his thoughts and feelings about his illness in a journal after being diagnosed with end-stage heart and kidney failure. A double transplant saved his life. Coon transformed his journal into a book, “Swim: A Memoir of Survival,” and is donating a percentage of sales to CNCF.
Between June 1 and July 31, CNCF will receive 20 percent of proceeds through Coon’s SWIM for a Cure eStore and 50 percent of online donations. The author is also donating a portion of book sales during that period to the family of Alec Kubica, a Lake Park High School graduate who was diagnosed with Stage 4 neuroblastoma last summer.
Coon held a book signing at Egg Harbor Café on June 11 and donated 20 percent of sales from that event to CNCF.
You can follow Bill’s journey at: http://thebillnessblog.blogspot.com/2011/05/swim-for-cure-cncfcure-for-kubica.html