Your child—or a member of your family—has been diagnosed with neuroblastoma. If your search for information and answers lead you here, take comfort in knowing you are not alone. The Children’s Neuroblastoma Cancer Foundation (CNCF) is comprised of families just like yours. It was created in 2000 to support the patients and families affected by neuroblastoma and to help find a cure. The information contained throughout this site was assembled by leading neuroblastoma medical experts, cancer organizations and families in search of answers too. We hope you find the information contained in these pages helpful no matter where you are in your neuroblastoma journey.
Newly Diagnosed Neuroblastoma Patients
A diagnosis of neuroblastoma brings with it an overwhelming number of questions, fears and decisions. Treatment decisions often need to be made quickly, adding to parents’ extreme stress in the early phases of the disease. To provide you with a solid foundation of knowledge, the Children’s Neuroblastoma Cancer Foundation has gathered some key resources to help you make informed decisions in the early days, weeks and months of a neuroblastoma diagnosis.
In Neuroblastoma Treatment
A diagnosis of neuroblastoma is confirmed. Where do you go from here? It’s important to get complete information about treatments and their potential effects on the child during this time. Getting the support and answers you need, will give you the ability to make informed decisions throughout the treatment process and beyond. We understand how stressful this time is for you as a parent, for your child and for the entire family. You are not alone in this fight.
After Neuroblastoma Treatment
The day has finally arrived. Neuroblastoma treatment has ended for your child and no evidence of disease (NED) can be detected. Hope is restored, but with a new sense of caution. While the worst is certainly behind you, it is important to seek support if and whenever it’s needed as the enduring stress can have long-term physiological and psychological impacts on both the patient and their families long-after treatment has ceased.
Despite waging courageous battles, some children don’t survive treatment. For parents and families who lose a child to neuroblastoma, CNCF offers unwavering support. We offer an abundance of expert resources to provide assistance and support. The CNCF Annual Conference includes a dedicated tract for “Angel” parents to provide emotional support on a wide variety of topics, including marital and sibling grief topics.