All of these videos are also available on our CNCF Conference YouTube channel, where you can easily watch them anytime, share them with family and friends, and stay connected with CNCF’s conference content.
***Each of the videos identified below are exclusively owned by Children's Neuroblastoma Cancer Foundation ("CNCF") and are subject to U.S. Copyright Laws. Neither video should be copied, used, displayed and/or the subject of a derivative work without the express written permission of CNCF. Any unauthorized copy, use, display and/or creation of a derivative work may be subject to claims of copyright infringement.***
Dr. Gudrun Schleiermacher, Siopen: NB Research in Europe
Dr. Ro Bagatell, COG Updates
Dr. Shailendra Das, Pulmonary Late Effects for NB Survivors
Dr. Ami Desai, Neuroblastoma Basics
Dr. Araz Marachelian, NANT New Trials & Updates on CLOSED
Dr. Jackie Kraveka, DFMO Updates & BCC Trials/Research
Lindsay Hesketh, LCSW, Coping with an NB Diagnosis
Survivor Story - Emily C.
Survivor Story - Esham
Dr. Esther Berko, Liquid Biopsies-Where is the use today
Dr. Angelika Eggert, Molecular Characterizations of Tumor
Dr. Lisa Diller, Late Effects & NB Survivors
Dr. Adam Durbin, Developing New Preclinical Tools and Approaches
Dr. Sara Federico, St. Jude Approach to High Risk NBL
Dr. Robbie Majzner, Targeting GD-2/CARs & Antibodies
Dr. Kris Bosse, Immunotherapeutic Target Discovery
Dr. Shakeel Modak, MSK Protocols & hTERT Study Results
Dr. Ami Desai, Neuroblastoma Basics
Dr. Goli Mostoufi Moab, Endocrine Issues Facing NB Patients
Gloria Galloway, Amber's Way Author
Dr. Giselle Sholler, DFMO, When & How It Is Used
Dr. Gengwen Tian, NKT Trial Update & New Immunotherapy Trial Opening
Dr Ken Desantes, MiNiVan Trial; Clarity Trial
Dr. Kyle Orwig, Fertility & Male NB Patients
Donna Ludwinski, Interpreting Results
Aiden Stotz, Survivor Story
Dr. Carol Thiele, Role of MYCN in Diagnosing Treating Outcomes
Dr. Araz Marachelian, History of NANT & Current Trials
Dr. Navin Pinto, COG Update
Dr. Patrick Renolds, GD 2 Expression As A Biomarker For Treatment
Dr. Mark Applebaum, Liquid Biopsies What Are They Are They Useful
Dr. Shakeel Modak, MSK Approach to Upfront Therapy for HRNBL; Updates
Jay Ferrick Survivor Story
Dr. Kelly Goldsmith, Targeted Therapy for NB. ALK and Beyond
Dr. Shahab Asgharzadeh, The Basics of NB Biology, Challenges in CAR-T
Dr. Valerie Brown, Beat Childhood Cancer Research Consortium Updates
Dr. Kim Kramer, Memorial Sloan Kettering (MSK) Treatment
Dr. Araz Marachelian, New Approaches to Neuroblastoma Therapy (NANT)
Kate Perchon, Survivor Drew's Story
NB Survivor Paige Zikmund
Dr. Ami Desi, Neuroblastoma Basics
Dr. Sara Federico, Trials at St. Jude
Dr. Mark Applebaum, INRG Data Commons- What is it?
Dr Liz Sokol, Genetic Alterations in Neuroblastoma
Dr. Paul Sondel, Immunotherapy for Neuroblastoma
Dr. Andras Heczey, CAR T CELL Trials
Dr. Michael Bardato, Drug Development Process in the FDA
Kristin Smith, Fertility Issues Facing Neuroblastoma Survivors
Dr. Meg Macy, drug development
Dr. Keri Streby, Oncolytic Virotherapy
Dr. VanHorn Gatlin, guilt in the treatment selection process
Dr. Leonid Metelitsa NKT cell-based immunotherapies
Dr. Araz Marachelian, NANT Trials
Dr. Yanik, Curie Scores & MIBG therapy – its current role in NB
Dr. Ami Desai, NB Basics and intro to Neuroblastoma
Survivor Stories 2022
Dr. Kate Matthay, COG & tomorrow’s treatments
2020 Neuroblastoma Parent Global Symposium (NPGS) videos now on youtube!
On 6-7 Nov the NPGS brought together over 750 registrants from 46 countries to participate in live presentations from 36 experts on the latest information on biology, treatment, research, late effects, and psychosocial challenges.
Free access to 25+ hours of recorded sessions can be viewed here https://www.youtube.com/channel/UCPf2wMnFK0YOZ2idAwqzWKA/videos
Dr. Mark Hughes, NB Survivor
Johnny L., NB Survivor
Dr. Jason Shohet, Immunotherapy & NB
Dr. Rani George, Transplant
Dr. Andrea Flynn, DFMO
Dr Goli Mostouffi Moab, Endocrine issues NB survivors
Dr Hillary VanHorn Gatlin, PTSD
Dr. Ami Desai, NANT
Avi Asher, NB Survivor
Dr. Mark Hughes, NB Survivor
Johnny L., NB Survivor
Dr. Jason Shohet, Immunotherapy & NB
Dr. Paul Sondel, What is the next generation of Immunotherapy
Dr. Mike Hogarty, Developing DFMO for treatment
Dr. Yael Mosse, Evolution of Precision Medicine
Dr. Araz Marachelian, New approaches to Neuroblastoma
Dr. Stephen Sands, Learning Issues for NB survivors/neuropsych
Dr. Ruth Ladenstein, Treatment of Hig-Risk Neuroblastoma in Europe
Dr. Holger Lode, Immunotherapy--current studies and results
Dr. Tim Cripe, Oncolytic virus therapy update
Stephen Sands PhD, Neuropsych issues facing survivors of NB
Dr. Clay Gustafson, Update on NANT trials
Dr. Sara Federico, St Jude updates and a new pilot study for high risk NB for COG
Dr. Tara Henderson, New studies for late effects
Survivor Reese Little 2015 CNCF Conference
Survivor Greg Giller 2015 CNCF Conference
Dr. Giselle Sholler, Update on NMTRC trials
Dr. Keri Streby, Getting to Know Clinical Trials
Dr. Danielle Friedman, Late effects discussion
Dr. Navin Pinto ,Overview of NB, Staging and Statistics
Jared Border survivor speech at the CNCF Conference
Dr. Yael Mosse, Adult NB and new clinical trial for relapsed NB
Dr. John Maris speaks on the topic of "What is or isn’t personalized medicine?"
Dr. Araz Marachelian speaks about NANT trials
Dr Brian Weiss speaks about MIBG as part of upfront therapy
Dr. Goli Mostouffi-Moab speaks about Late effects/Endocrine issues
Jay Ferrick and Emily Ware Survivor Stories
Dr. Nilay Shah, Use of molecular bio marks for improved prognosis
Dr. Keri Streby speak about Oncolytic Virus Therapy update
Dr. Kate Matthay speaks about NANT
Dr. Darrell Yamashiro, Personalized medicine-what testing can be done
Dr. Navin Pinto, Genetics: Focus on Neuroblastoma
Carolyn Coveney Survivor Story
Dr. Jason Shohet, Cancer Stem Cells: new treatment opportunities
Dr Araz Marachelian update on new approaches to Neuroblastoma Therapy
Dr. Susan Cohn, Understanding clinical trials
Dr. Rupert Handgretinger, Haplo Stem Cell
Dr. Keri Streby, Nationwide Children's Virus Therapy Update
Dr. Paul Sondel, Immunotherapy
Dr. Sam Volchenboum, INRG Database
Dr. Giselle Scholler, Update on NMRTC studies
Hillary Van Horn Glatin, Emotional strains of childhood cancer
Dr. Steve DuBois
Dr. Don Elsin
Dr. Patrick Renyolds
Transplant discussion with Dr. Chung, Dr. Greg Yanik, Dr. Yamashiro and Dr Ellen Bolotin presentation Managing Neuroblastoma: Promise or practice. 3-part series.
Part #1
Part #2
Part #3
Dr. Michael Burke
CNCF Conference Testimonial
Dr. Giselle Scholler
Dr. Doug Strother
Hope Unites Us Video