***Each of the videos identified below are exclusively owned by Children's Neuroblastoma Cancer Foundation ("CNCF") and are subject to U.S. Copyright Laws. Neither video should be copied, used, displayed and/or the subject of a derivative work without the express written permission of CNCF. Any unauthorized copy, use, display and/or creation of a derivative work may be subject to claims of copyright infringement.***
2024 Parent Education Conference
Dr Ami Desai, Neuroblastoma Basics
Dr Goli Mostoufi Moab, Endocrine Issues Facing NB Patients
Gloria Galloway, Amber's Way Author
Dr Giselle Sholler, DFMO, When & How It Is Used
Dr Gengwen Tian, NKT Trial Update & New Immunotherapy Trial Opening
Dr Ken Desantes, MiNiVan Trial; Clarity Trial
Dr Kyle Orwig, Fertility & Male NB Patients
Donna Ludwinski, Interpreting Results
Aiden Stotz, Survivor Story
Dr Carol Thiele, Role of MYCN in Diagnosing Treating Outcomes
Dr Araz Marachelian, History of NANT & Current Trials
Dr Navin Pinto, COG Update
Dr Patrick Renolds, GD 2 Expression As A Biomarker For Treatment
Dr Mark Applebaum, Liquid Biopsies What Are They Are They Useful
Dr Shakeel Modak, MSK Approach to Upfront Therapy for HRNBL; Updates
Jay Ferrick Survivor Story
2023 Parent Education Conference
2022 Parent Education Conference
Dr. Meg Macy, drug development process
Dr. Keri Streby, Oncolytic virotherapy
Dr. VanHorn Gatlin, guilt in the treatment selection process
Dr. Leonid Metelitsa NKT cell-based immunotherapies
Dr. Araz Marachelian, NANT trials
Dr. Yanik, Curie Scores & MIBG therapy – its current role in NB
Dr. Ami Desai, NB Basics and intro to Neuroblastoma
Survivor Stories 2022
Dr. Kate Matthay, COG & tomorrow’s treatments
2020 & 2021 Neuroblastoma Parent Global Symposium (NPGS)
2020 Neuroblastoma Parent Global Symposium (NPGS) videos now on youtube!
On 6-7 Nov the NPGS brought together over 750 registrants from 46 countries to participate in live presentations from 36 experts on the latest information on biology, treatment, research, late effects, and psychosocial challenges.
Free access to 25+ hours of recorded sessions can be viewed here https://www.youtube.com/channel/UCPf2wMnFK0YOZ2idAwqzWKA/videos
Conference Videos 2019
Dr. Mark Hughes, NB Survivor
Johnny L., NB Survivor
Dr. Jason Shohet, Immunotherapy & NB
Dr. Rani George, Transplant
Dr. Andrea Flynn, DFMO
Dr Goli Mostouffi Moab, Endocrine issues NB survivors
Dr Hillary VanHorn Gatlin, PTSD
Dr. Ami Desai, NANT
Dr. Mark Hughes, NB Survivor
Johnny L., NB Survivor
Dr. Jason Shohet, Immunotherapy & NB
Avi Asher, NB Survivor
Conference Videos 2018
Dr. Paul Sondel, What is the next generation of Immunotherapy
Dr. Mike Hogarty, Developing DFMO for treatment
Dr. Yael Mosse, Evolution of Precision Medicine
Dr. Araz Marachelian, New approaches to Neuroblastoma
Dr. Stephen Sands, Learning Issues for NB survivors/neuropsych
Dr. Ruth Ladenstein, Treatment of Hig-Risk Neuroblastoma in Europe
Conference Videos 2016
Dr. Holger Lode, Immunotherapy--current studies and results
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Dr. Tim Cripe, Oncolytic virus therapy update
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Stephen Sands PhD, Neuropsych issues facing survivors of NB
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Dr. Clay Gustafson, Update on NANT trials
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Dr. Sara Federico, St Jude updates and a new pilot study for high risk NB for COG
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Dr. Tara Henderson, New studies for late effects
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Conference Videos 2015
Survivor Reese Little 2015 CNCF Conference
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Survivor Greg Giller 2015 CNCF Conference
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Dr. Giselle Sholler, Update on NMTRC trials
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Dr. Keri Streby, Getting to Know Clinical Trials
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Dr. Danielle Friedman, Late effects discussion
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Dr. Navin Pinto ,Overview of NB, Staging and Statistics
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Jared Border survivor speech
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Dr. Yael Mosse, Adult NB and new clinical trial for relapsed NB
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Dr. John Maris speaks on the topic of "What is or isn’t personalized medicine?"
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Dr. Araz Marachelian speaks about NANT trials
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Conference Videos 2014
Dr Brian Weiss speaks about MIBG as part of upfront therapy
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Dr. Goli Mostouffi-Moab speaks about Late effects/Endocrine issues
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Jay Ferrick and Emily Ware Survivor Stories
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Dr. Nilay Shah & Dr. Keri Streby speak about Oncolytic Virus Therapy update/use of molecular biomarks for improved prognosis and therapeutic evaluation.
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Click here for Dr. Keri Streby video
Dr. Kate Matthay speaks about NANT
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Dr. Darrell Yamashiro and Dr. Navin Pinto speak about Personalized medicine-what testing can be done?
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Carolyn Coveney Survivor Story
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Dr. Jason Shohet speaks about Cancer Stem Cells: new treatment opportunities.
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Conference Videos 2013
Dr Araz Marachelian update on new approaches to Neuroblastoma Therapy (NANT)
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Dr. Susan Cohn, Understanding clinical trials
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Dr. Rupert Handgretinger, Haplo Stem Cell
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Dr. Keri Streby, Nationwide Children's Virus Therapy Update
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Dr. Paul Sondel, Immunotherapy
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Dr. Sam Volchenboum, INRG Database
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Dr. Giselle Sholler, Update on NMRTC studies
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Hillary Van Horn Glatin, Emotional strains of childhood cancer
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Conference Videos 2011
Conference Videos 2010
Transplant discussion with Dr. Chung, Dr. Greg Yanik, Dr. Yamashiro and Dr Ellen Bolotin presentation Managing Neuroblastoma: Promise or practice.