Information. When a child is diagnosed with neuroblastoma, getting access to the information and resources you need to make the best possible decisions for your child is an important first step. CNCF has assembled a comprehensive list of resources to support you through every phase of your journey with neuroblastoma – from diagnosis to treatment, late effects and beyond. Here you will find information on the latest neuroblastoma research, educational information and a reading list for parents and patients. If you haven’t already, be sure to download the NB Parent Handbook, which also has a wealth of useful information and is written by parents just like you.
New Approaches to Neuroblastoma Treatment – www.nant.org
NB Clinical Trials – www.clinicaltrials.gov
Skivolo is a young red panda who has high-risk neuroblastoma. He has many questions about neuroblastoma, such as "Why am I sick?", "Did I get cancer because I was bad?", and "Can I play with other kids when I go to the hospital?" to learn more go to Skivolo's World
United Therapeutics Neuroblastoma Info
Y-mAbs High-Risk Neuroblastoma Information for patients and caregivers brochure. Click here to learn more.
We continue to add to this list of critical resources on an ongoing basis. If you have suggestions for additional items, please feel free to drop us a note at info@cncfhope.org.